UNIVERSITAS AIRLANGGA



Detail Article

Jurnal Ners

ISSN 1858-3598

Vol. 5 / No. 2 / Published : 2010-10

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Original Article :

Proses berduka dan beban yang dialami keluarga dalam merawat anak dengan autisme (the grieving process experienced family and charges in treating children with autism)

Author :

  1. Rizki Fitryasari Patra Koesoemo*1
  1. Dosen Fakultas Keperawatan UA

Abstract :

Introduction: Children with autism will be a stressor to their family. This research aims to describe about family grieving process and family burden when taking care of their children with autism at Special Needs School Bangun Bangsa, Surabaya. Method: This research used descriptive phenomenology design with indepth interview method. The participant of this research was  six member of  a family who plays role as the main caregiver for autism child. This study employs the purposive sampling method. The data is gathered through interviews and field notes that is then analyzed with the Collaizi technique. This research generated three themes.Result: The results illustrate families display the grieving process as a cycle. They feel a deep, permanent and long period of grief  through in to five stages of grief: denial, anger, depression, bargaining and acceptance. The Grieving is come from the caregiver and the autism child. Large amounts of grief cause families in grief for a long period and this causes family burden. There are six family burden, psychological burden, physical burden, financial burden, social burden, time burden and thought burden.  Conclusion : Finding of the research would hopefully be beneficial to professional health staff, especially psychiatric nurses to complete their ability in minimizing various negative impacts that the family may suffer from while taking care their autism children with autism through nursing care plans designs development, researches about family empowerment in burden managements and also a research to improve the Family Psycho-education Therapy and a specific Supportive Group Therapy modules for family with autism children.

Keyword :

autism, family, grieving process, family burden,


References :

Rodrigues,(2007) Financial burden in families with children with special health care needs - : Journal Pediatric Psychology





Archive Article

Cover Media Content

Volume : 5 / No. : 2 / Pub. : 2010-10
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  2. Tingkat Stres Kerja Dan Perilaku Caring Perawat (work Stress Level And Caring Behaviour Of Nurses)
  3. Latihan Active Lower Range Of Motion Menurunkan Tanda Dan Gejala Neuropati Diabetikum (active Lower Range Of Motion Reduce The Sign And Symptom Of Diabetic Neuropathy)
  4. Beban Perempuan Penderita Hiv/aids Dalam Perspektif Gender (the Woman Burden Of Hiv/aids Patient In Gender Perspective)
  5. Pemberian Sukrosa Dan Non-nutritive Sucking Terhadap Respon Nyeri Dan Lama Tangisan Neonatus Pada Prosedur Invasif (grant Of Sucrose And Non-nutritive Sucking To Pain Response And The Long Cries Of Neonates To Invasive Procedures)
  6. Intervensi Keperawatan Melalui Pendampingan Meningkatkan Perilaku Pemberian Makan Pada Anak Usia 6-24 Bulan Pada Keluarga Inti Dan Besar (nursing Intervention Through Family Pathnership Increases Behavior In Practice Of Feeding Pattern On Infant Of Age 6-24 Months For Nuclear And Extended Family)
  7. Penurunan Kecemasan Ibu Menjelang Seksio Sesaria Dengan Model “sayang Bunda” (the Decrease Of Anxiety In Secsio Sesaria Mother With “sayang Bunda” Model)
  8. Pengalaman Masa Pubertas Remaja Studi Fenomenologi Di Purwokerto (the Puberty Experience Of Adolescent Fenomenology Study In Purwokerto)
  9. Analisis Kepuasan Kerja Perawat Berdasarkan Iklim Organisasi (the Analysis Of Job Satisfaction Nurse Based On Organizational Climate)
  10. Proses Berduka Dan Beban Yang Dialami Keluarga Dalam Merawat Anak Dengan Autisme (the Grieving Process Experienced Family And Charges In Treating Children With Autism)
  11. Tingkatan Domain (bloom) Pengetahuan Lajut Usia Tentang Kebutuhan Nutrisi (level Of Knowledge About Nutitional Need For Elderly Based On Bloom Domain)
  12. Konseling Kelompok Lebih Efektif Daripada Penyuluhan Dalam Perbaikan Tindakan Pencegahan Dbd (group Counseling Is More Effective Than Elucidation To Improve Of Patriarch’s Behavior In Dhf Prevention)
  13. Penurunan Kadar Kolesterol Dengan Terapi Bekam (the Effect Of Cupping Therapy On Cholesterol Reduction In Patients With Hypercholesterolemia)

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